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Information in English

    


Caregiver: Someone who provides whatever is needed for another person's well-being. 

Cooking meals  -  Providing transportation
Cleaning house  -  Arranging for services
Buying groceries  -  Assisting with bathing
Managing medicines  -  Paying household bills

That Sounds Like Me!

I Don't Have Time To Take Care of Myself!

Likely the best thing a caregiver can do for their loved one is to take care of themselves.

Caregivers tend to put their own needs on the back burner - - - but if you're not healthy you can not provide assistance to another.

-  When did you last have a medical check-up?
-  When did you last engage in a fun, favorite activity?
-  When did you last get together with friends or family for some fun?
-  When did you last sleep all night?

It's okay and important to take care of yourself!

Research indicates that 46% - 59% of caregivers are clinically depressed.  When did you last talk about your feelings with someone?

  Pay attention to eating right, getting enough sleep and exercising some!

  Check out the Caregiver Stress test at http://www.caregiverstress.com/

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Is There Some Equipment That Will Help!

Have you ever had to call a tow truck to change a tire?  They come with all the right equipment and in a flash and with seemingly little effort the tire is changed!  Most of us would say "Well if I had all that stuff I could do it myself!"

Having the right equipment can make caregiving tasks simpler, faster and more efficient.

Discuss needs with your doctor.  You can ask for a physical or occupational therapy evaluation.

Equipment To Consider:

-  Bedside commode
-  Hand-held shower head
-  Handrails
-  Lift chair
-  Ramp
-  Raised commode seat
-  Shower seat / bath bench
-  Walker
-  Wheelchair

Contact agencies from the yellow pages of the phonebook under hospital equipment and supplies or under medical equipment and supplies.

Contact the Caregiver Support Program at the Department of Social Services for assistance at 704-336-3150 or email at caregiver@mecklenburgcountync.gov

Check out emergency response services such as LifeLine - 704-384-3573 or ResponseLink - 704-875-8473

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Where Can I Find Some Support?

I'd just like to know I'm not in the boat by myself!

Professional Care Managers can help you sort out your questions and make a plan.   www.caremanager.org

Support groups, training and counseling may be the answer.  Groups meet at various times in different locations all over the county.
they are all different - - - one size does not fit all!

If your loved one is in another county - contact the Area Agency of Aging 704-348-2738.

Support may be as close as family members.  Being specific with your brother about what you need him to do to help with Mom may result in quicker cooperation.

-  SupportWorks 704-331-9500 or http://www.supportworks.org/ (On the SupportWorks website click on A local support group.)

-  Hope Cancer Ministries 704-364-1440

-  Alzheimer's Association for dementia specific groups - 704-532-7390

-  Hospice Bereavement Support Groups 
     Hospice and Palliative Care, Charlotte Region  704-375-0100  
     Presbyterian Hospice and Palliative Care 704-384-6478

Two quick hints:
1.  Have a job jar and when the well-intentioned friend or family member says, "Let me know what I can do to help."  Have the suggestions ready!

2.  Tell the family - "The doctor wants Mom to have X,Y, and Z.  I can do Y and Z.  Who can do X?

If you don't know call Just1Call at 704-432-1111.

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Transportation, Food and Finances Are Real Problems

Being a caregiver can exhaust not only physical and mental resources but financial reserves as well.

Check out the availability of some of these resources:

Elderly General Transportation
Congregate meals/Home delivered meals
Food Pantries
Contact the Department of Social Services 704-336-3150.

Friendship Trays 704-333-9229

Crisis Assistance Ministry 704-371-3000
Matthews Help Center - 704-847-8383

Food Stamps - 704-336-3150
Medicare - including Medicare Part D
Medicaid

Veterans Benefits - 704-563-2037

If you need assistance accessing these services, call the following numbers for more information and referrals:

Just1Call 704-432-1111

Department of Social Services Citizens Information and Referral Center 704-336-3150

United Way 2-1-1

Tips for getting the information you need:
-  Be specific and to the point
-  Be prepared with all the information you may need in front of you
-  Leave a clear message if necessary
-  Get the name of the person you speak with
-  Be prepared for some delays - the system may work slowly
-  Plan ahead when possible
-  Try to call early in the morning; avoid Mondays and Fridays, if possible.

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Just Need a Break!

Res-pite (respite) a break, relief, breathing space.

Caregivers need time for themselves and breaks are a necessity to maintain good physical and emotional health.

Possible sources for respite - Experiment till you find the right fit!
-  Family Members
-  Faith community care-teams
-  Shepherd's Center Caregiver Program 704-365-1995
-  Parkinson Association 704-248-3722
-  Adopt-An-Elder 704-536-5588
Adult Day Center with a social and/or health model
     -  Adult Care & Share Center
        6709 Idlewild Road
        Charlotte, NC   28212
        704-567-2700
        email:  careandshare@bellsouth.net
     -  Blessed Assurance Adult Day and Health Care Services
        
13001 Idlewild Rd.
        Matthews, NC   28105
        704-845-1359
        email:  Blessedadultcare@juno.com
        website:  www.Blessedadultcare.org
     -  Loving Care Adult Day Care & Health Center
       
7917-D Moores Chapel Road
        Charlotte, NC   28214
        704-391-2776
        email:  lovingcareadc@aol.com
     -  Loving Touch Adult Day/Health Care Center, Inc.
       
1302 Beatties Ford Road
        Charlotte, NC   28216
         704-331-0015
        email:  joycedfreeman@aol.com
     -  Luz Naciente Adult Day Care
        
5523 Starkwood Drive
        Charlotte, NC   28212
        704-532-2258
        email:  luznacientead@yahoo.com 
     -  Mount Olive Adult Day Care Home
        10016 Garthwood Road
        Charlotte, NC   28273
        704-527-7342
     -  New Friends Adult Day Care/Day Health, Inc.
       
5600 The Plaza
        Charlotte, NC   28215
        704-531-7663
        704-531-5585
        email:  epwalk61@hotmail.com
     -  Pritchard PALS @ Pritchard Memorial Baptist Church - PALS
       
1201 South Blvd.
        Charlotte, NC   28203
        704-370-0093
        email:  palscare@bellsouth.net
        web:  www.palscare.org
     -  Shining Stars Adult Day Respite
       
St. Gabriel Catholic Church
        3016 Providence Road
        Charlotte, NC   28211
        704-376-4135
     -  University Adult Care, Inc.
        
1324 John Kirk Drive
        Charlotte, NC   28262
        704-510-0030 
        email:  rubyrn@yahoo.com
         
- Assisted living or nursing home facility short term
-  In Home Services (look in the yellow pages under Home Health Services
-  Black Mountain Center - Alzheimer's Respite Program 828-669-3379
-  Easter Seals/United Cerebral Palsy 704-529-5195 
-  Multiple Sclerosis 704-525-2955

Family Caregiver Support Program and Project C.A.R.E. may be able to assist with respite 704-336-3150.

For working caregivers check with your employer to see what benefits might be available.

If your care-recipient has Medicaid you may want to explore Personal Care Services or the Community Alternative Program 704-336-4674.

Quick Tips

-  For a mini break, try this relaxation technique. . .
-  Do some deep breathing:  Breathe in through your nose to the count of four, hold your breath for four counts, blow out slowly through your mouth.  Repeat several times.
-  A professional care manager can help you locate services quickly.  There is a fee for the services.

keywords:  respite, adult day care, care manager

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What Can I Do About Important Legal Issues?

One of the best things to do to avoid a crisis is to Plan Ahead!

-  What is the plan if you get sick or are injured in an accident?

-  What are your loved one's wishes for end of life care ?  (For example:  tube-feeding, ventilation, Do Not Resuscitate)

When you or your loved one can no longer make decisions - who can and who will make those decisions?

Issues to consider:
-  Living Wills*
-  Durable Powers of Attorney*
-  Guardianship
-  Health Care Power of Attorney*

Consult with an Estate and Elder Law Attorney.

Consult Legal Services for the Elderly 704-334-0400

Legal Services of Southern Piedmont 704-376-1600

Access free forms for advance directives at www.caringinfo.org

* Remember documents are not official until they have been notarized.

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How Will I Know If It's Time for Long Term Care?

Nursing home care (LTC) describes residence in one of the following: 
- Family Care Home
- Assisted Living Facility
- Nursing Home

Residents receive supervision/assistance 24 hours each day.  You continue to be a caregiver and advocate, but the care is a shared responsibility.

Contact the Ombudsman program 704-372-2416 for information about facilities.

Placement assistance is available at the Department of Social Services 704-336-3150.

There is a range of care from independent living to nursing home residency with many options of care possibilities in between.  Caregivers need to be realistic about how much care is needed.  Talking honestly with the doctor is very important.  

Note the tell-tale signs that indicate the need for a change. . .
- - -The loved one may need more care than you are able to provide.
     -  How often is care needed?
     -  What type of care is needed - non-medical, skilled nursing or Hospice?
     -  Are the financial needs a burden?

- - -The Caregiver may have reached her/his limits
Are you:
     -  Snapping at the loved one over little things
     -  Being constantly irritated
     -  Seldom laughing anymore
     -  Feeling constantly tired or pressured
     -  Losing sleep, sleeping too much, sleeping restlessly
     -  Yelling or screaming, having crying jags or rages
     -  Withholding affection
     -  Withholding  assistance to the care recipient
     -  Blaming the care recipient for being in this situation
     -  Refusing to go out anymore
     -  Withholding expenditures for goods, services or loved one's needs because he/she is going to die soon and it is wasted money?
(Adapted from Senior.Mag.com, 2002)

Be honest with yourself!

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Local Training Is Available

Learning more about your job as a caregiver can give you more confidence in your role and more success.

The caregiver specialist "Have Training - Will Travel" will come to your church, synagogue, club, or support group to discuss caregiving issues.  Trainings and caregiver celebrations are offered throughout the year.  Contact the caregiver specialist at 704-336-3150 or email at caregiver@mecklenburgcountync.gov with your questions or to indicate your interest in being notified about any of these events or the two trainings below.

Two (2) specific training programs are available:
Powerful Tools for Caregivers
Learn to reduce stress, improve self-confidence, better communicate your feelings, balance your life, increase your ability to make tough decisions and locate helpful resources.  This is a series of six (6) classes taught by two trained leaders.  Classes will take place throughout the community.

Caring for You, Caring for Me
Curriculum developed by the Rosalynn Carter Institute for Human Development.  In the five (5) sessions you will have an opportunity
-  gain information on various topics related to caregiving
-  learn methods of coping with the stresses and strains of being a caregiver
-  learn what resources are available
-  discover ways to work together with other helpers
-  recognize that you are not alone

There is wonderful information on the internet that you can use to educate yourself.  We highly recommend the following sites:

NC Division of Aging and Adult Services
www.dhhs.state.nc.us/aging

National Family Caregiver's Association
www.nfcacares.org

National Alliance for Caregiving
www.caregiving.org or http://www.familycaregiving101.org/

Family Caregiver Alliance
www.caregiver.org  

AARP
www.aarp.org

Other community training available:

Central Piedmont Community College 704-330-2722

Centralina Area Agency on Aging - regional events and training - 704-348-2738

Hospice and Palliative Care, Charlotte Region 704-375-0100

Red Cross Caregiving Training - 704-376-1661

Western Carolina Chapter Alzheimer's Association 704-532-7392

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Current Training

What's Wrong With My Loved One?

A good evaluation by the doctor is essential for making a care plan.  The doctor will need input from the caregiver about their observations and concerns.

The more you know about the loved one's illness the better prepared you'll be to deal with behaviors and needs.  Here are some possible resources about common illnesses:

AIDS
Metrolina AIDS Project 704-333-1435
or 1-800-289-2437

Alzheimer's and Related Dementias
Western Carolina Chapter Alzheimer's Association
Help line 704-532-7390
http://www.alz.org/ or in North Carolina www.alz-nc.org
Duke Family Support Program 1-800-672-4213

Arthritis
704-529-5166
www.arthritis.org

Cancer
American Cancer Association
704-552-6147
www.cancer.org

Diabetes
American Diabetes Association
704-373-9111
www.diabetes.org

Heart Attack
American Heart Association
704-374-0632
www.americanheart.org

Leukemia
1-800-888-9934

Lung Disease
1-800-892-5650

Multiple Sclerosis
704-525-2955
National 1-888-532-7667
www.msaa.com

Muscular Dystrophy
704-567-2912
www.mdausa.org

Parkinson's Disease
704-248-3722
www.apdaparkinson.org

Stroke
National Stroke Association 1-800-787-6537
www.stroke.org

Terminal Illness
Hospice and Palliative Care Charlotte Region  704-375-0100
Advanced Home Care - 704-384-4130

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Basic Facts About Adult Day Programs

Adult Day Care and Adult Day and Health Care programs are services designed to provide group care and supervision in a place other than one's home on a less than 24-hour basis to adults who may be physically or mentally challenged. These programs consist of organized activities and services, during the day, that support an adult's personal independence and promote his/her social, physical and emotional well being. The Adult Day and Health Care program differs from Adult Day Care in that an on-duty nurse provides health care monitoring, immunizations, medicine administration and various other nursing related activities supporting each participant's health. Normally meals (breakfast, lunch and an evening snack) are served daily, transportation to and from the facility is provided or arranged and off campus trips are conducted several times a year. A typical Adult Day Program will begin as early as 6 a.m. and end as late as 6 p.m. Throughout the day the participants engage in various arts, crafts, aerobics, music programs, religious programs and recreation programs.  Some programs offer gardening. Specialty services (physical, occupational, speech and respiratory therapy; manicures, pedicures, hair styling and dental screenings) are arranged on site by many programs. Ideally, the Adult Day Program helps care providers by meeting all of their loved ones needs during the day, so that the working care giver can work, the fulltime care giver can get a break and the participant can enjoy life to its fullest.

Adult Day Programs costs range from $35 to $60 per day depending on the degree of care and services a participant needs. Some programs cater to seniors while others serve people with a variety of challenges (Alzheimer's, Parkinson's, Downs Syndrome, ALS, Cerebral Palsy, Multiple Sclerosis, Stroke Victims, Mentally Retarded, Diabetics, Brain Injury Survivors, amputees, paralyzed, etc.). All programs require a medical examination with a doctor's recommendation for participant enrollment.

Advantages for Caregivers and Participants:

Caregivers are Able To:
-  Return to fulltime employment.
-  Continue their education.
-  Gain valuable respite or breaks from fulltime care giving.
-  Acquire much needed to time to raise their own children.
-  Acquire valuable time to cultivate their marriage.
-  Acquire much needed time to plan long term care events.
-  Receive much needed financial relief.
-  Acquire much needed time to grieve.
-  Connect with a support system to help manage loved ones.

Adult Day Care Participants are Provided:
-  A safe and stimulating environment daily.
-  Medical monitoring daily rather than annually.
-  Medicine administration daily.
-  A well balanced nutritious meals daily.
-  Life enhancing and educational programs daily.
-  Physically and mentally challenging exercises daily.
-  Personal care/hygiene services daily.
-  Rehabilitative services daily.
-  An environment that promotes self-esteem and self-worth daily.
-  The ability to return to their own home and own beds each evening.

How to select an Adult Day Care Program:

In selecting an Adult Day Care program, consumers should contact their local Area Agency on Aging (Ombudsman Program, 1-800-508-5777), Council on Aging, Department of Social Services 704-336-3150, United Way 2-1-1 or contact "Just 1 Call" at (704) 432-1111. The North Carolina Department of Health and Human Services also maintains a list of North Carolina Licensed Adult Day Programs at www.dhhs.state.nc.us/aging/adcadh.htm

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Information in English

Copyright © 2006, Just1Call